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From Women’s Parkinson’s Experiences to Evidence for Personalised Care
I first noticed a Parkinson’s symptom — micrographia, or small handwriting — while I was working in my dietetic clinic and three months pregnant. A decade later, that first small change in my handwriting has become part of a much bigger story: how women’s lived experiences can be recognised, measured and turned into evidence for better care. At the time, I had no idea that my diagnosis would lead me on a journey that brought together my training as a scientist and dietitian,
6 days ago6 min read
When Hormones Hide the Truth: What Parkinson's Research Is Finally Beginning to Reveal
I bought this at the Frank Lloyd Wright Museum after the WPC Congress in Phoenix, Arizona. Sometimes the most important discoveries aren't about finding new answers. They're about asking better questions. A large Latin American study recently reported that men and women experience similar rates of levodopa-induced dyskinesia (LID). At first glance, the finding seems reassuring. It suggests that sex may not play a major role in one of Parkinson's most challenging treatment com
Jun 234 min read
What Parkinson’s Research Can Learn from the Fashion and Makeup Industry?
I've spent a number of hours this evening preparing a presentation on managing women with Parkinson's for the Parkinson's UK Pharmacy Network. I have tried my damnedest to find sex differences in research on device-aided infusion therapies for people with Parkinson's, and every paper I've looked at says "this paper does not look at the differences between the sexes." I suddenly thought, is there any industry where sex differences are paramount to the industry? Of course, fash
Jun 86 min read
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