Women with Parkinson's & Working Survey
The European Federation of Neurological Alliances (EFNA) recently reported that 70% of women said that managing their neurological condition led to missed days from work. A recent paper looking at lost employment due to Parkinson's found that those diagnosed early in their career faced 20 years of lost earning potential. Many reported dexterity, eating, sleep, fatigue, and anxiety as factors for leaving work.
My Moves Matter have created our own survey to see the impact of Parkinson's on working in employment, at home and as a carer. Please complete our anonymous survey to help raise awareness of the specific work related issues facing women.
Michael J Fox Women's Survey
Experiences of Women Living with PD - Pre, Peri, and Post Menopause
This is a comprehensive survey designed by women with Parkinson’s. The aim of this survey is to try to better understand women’s health as it relates to PD. Note: you will need to sign up to the Fox Insight platform to do the survey.
Menopause & PD Research
We have collaborated with Dr Eva Bunting of Princess Royal Hospital in the UK in a research survey into the experience of women living with PD and the perimenopause/menopause. Please complete the survey to help us understand more about PD & the Menopause.
Unmet Needs of Women with Parkinson's
Six women researchers, of whom five are doctors of medicine and three are living with PD, published a review article in the journal, Movement Disorders, titled, “Unmet Needs of Women Living with Parkinson's Disease: Gaps and Controversies” (Subramanian et al., 2022). They sought to rigorously evaluate and document the current knowledge, gaps and possible strategies to address the unmet needs of women living with PD, with a focus on the clinical and psychosocial aspects. You can listen to Professor Subramanian who is the lead author and a member of the My Moves Matter Clinical & Research Advisory panel talk about the key findings