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UCC Pilot Study 

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You can change the way women with PD are treated.

Together we can help women get better treatment.

Women have the unique challenge of navigating PD whilst going through many hormonal stages in life from those still menstruating, through pregnancy, perimenopause, menopause and post menopause. We are running a global, first of its kind study, in collaboration with researchers from University College Cork, Ireland to understand the impact of these different stages of life on women with PD. 

We are recruiting women of all ages for this study. Please see below.

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Women of any age with PD can take part

Please join the study if you are a woman with PD who is:

  • Pre-menopausal (i.e. still menstruating even if irregular or on contraception)

  • Pregnant

  • Peri-menopausal (even if still menstruating or on hormone therapy)

  • Menopausal (even if on hormone therapy)

  • Postmenopausal (even if on hormone therapy)

What do you need to do?

Start Tracking

Once you have consented to the study and completed the first survey and entered your UCC study code we ask you to set up your medication cabinet and medication reminders on the app.

 

Click here to see explainer video on setting up your medication cabinet.

You then just start tracking your

  • PD symptoms 

  • medication

  • periods, if you are still having periods, even if erratic

To see if women are experiencing fluctuations of their PD symptoms across their menstrual cycle  we need you to track daily for the next 4 months because menstrual cycles can vary and we need enough cycles in order to see if there are any patterns.

We also need those women who are pregnant, perimenopausal, menopausal or post menopausal to also track daily over 4 months so that we can compare PD symptoms and medication usage across the different hormonal stages. 

When you feel well with your PD you may be less likely to track as often, however in order for the researchers to see

  1.  any patterns across the menstrual cycle

  2.  any impact of other hormonal stages on PD symptoms

it is as important for you to track when your symptoms are mild as when they are severely affecting you every day for the 4 months. 

2. Track your PD symptoms. Click here for explainer video

3. When you start your period, simply track all the days of your period during each of the 4 months. Click here for explainer video.

1.  Track your medication intake. 

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4. There is an option to track exercise, this is optional.

5. There is a journal which you can use, this is also optional.

Final surveys

When you have finished tracking for the 4 months you will be sent two final online surveys to complete. 

Support

If you have any queries about the study you can email UCC using PDstudy@ucc.ie. If you have any queries about using the app you can email richelle@mymovesmatter.com.

Your data

Only your medication, PD symptom and period tracking data will be shared with the researchers and all data is anonymous. If you choose to use the exercise tracking it will also be shared but anything you add to the journal will not be shared.

After the study

After you complete the study, you can keep using the app for free and you will be able to see all your own tracked data from the 4 months.

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Thank you for considering taking part in this study.

 

Your participation will help us to understand the impact

of hormone cycles on women with PD.

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