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UCC Pilot Study 

Welcome to our pilot study "Tracking Parkinson’s Disease (PD) symptoms, medications, and menstruation"  in collaboration with researchers from of Department of Anatomy and Neuroscience, School of Medicine at the University College Cork, Ireland.

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We are recruiting women of all ages for this study. Please see below.

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Who can take part in our study?

You are invited to take part as a woman with Parkinson's who may or may not still be menstruating.

 

In addition to women with PD who are still menstruating, we are also looking for women with PD who are not menstruating or have erratic periods to take part in the study:

  • Pregnant

  • Peri-menopausal

  • Menopausal

  • Postmenopausal

Want to sign up for our study?

  1. Complete the study consent form - UCC MMM Pilot Study Consent form. 

  2. You will then be directed to complete a survey and to create a unique study identifier code which you will need to remember, so note it down somewhere.

  3. If you already have the My Moves Matter app, you need to go to where you registered for the app and enter your unique identifier study code into the box called 'Clinical Trial ID' and press the save button.

  4. If you do not have the My Moves Matter app, you can download it here. You need to register on the app and enter your unique identifier study code into the box called 'Clinical Trial ID' and press the save button.​​

 

Click here to see video on how to register and enter your unique identifier study code. 

Start Tracking

Once you have consented to the study and completed the first survey and entered your unique identifier code we ask you to set up your medication cabinet and medication reminders on the app.

 

Click here to see explainer video on setting up your medication cabinet.

You then just start tracking your

  • PD symptoms 

  • medication

  • periods, if you are still having periods, even if erratic

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To see if women are experiencing fluctuations of their PD symptoms across their menstrual cycle  we need you to track for the next 4 months because menstrual cycles can vary and we need enough cycles in order to see if there are any patterns.

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We also need those women who are pregnant, perimenopausal, menopausal or post menopausal to also track over 4 months.

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When you feel well with your PD you may be less likely to track as often, however in order for the researchers to see

  1.  any patterns across the menstrual cycle

  2.  any impact of other hormonal stages on PD symptoms

it is as important for you to track when your symptoms are mild as when they are severely affecting you every day for the 4 months. 

2. Track your PD symptoms. Click here for explainer video

3. When you start your period, simply track all the days of your period during each of the 4 months. Click here for explainer video.

1.  Track your medication intake. 

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4. There is an option to track exercise, this is optional.

5. There is a journal which you can use, this is also optional.

Final surveys

When you have finished tracking for the 4 months you will be sent two final online surveys to complete. 

Support

If you have any queries about the study you can email UCC using PDstudy@ucc.ie. If you have any queries about using the app you can email richelle@mymovesmatter.com.

Your data

Only your medication, PD symptom and period tracking data will be shared with the researchers and all data is anonymous. If you choose to use the exercise tracking it will also be shared but anything you add to the journal will not be shared.

After the study

After you complete the study, you can keep using the app for free and you will be able to see all your own tracked data from the 4 months.

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Thank you for considering taking part in this study.

 

Your participation will help us to understand the impact

of hormone cycles on women with PD.

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